10 Minutes

I am disappearing into my chest cavity.
I say it feels safe there, but really it just feels lonely.
Lonely is what I think I deserve.
My body is a disaster zone, alarms ringing
Was it five? -No it was six ER visits this year.
I’ve only had surgery once.
This year.
My bracelet reads
NARCOLEPSY/CATAPLEXY
DIABETES TYPE 2
It deadnames me and gives my mother’s cellphone.
I’m too sick to be queer.
At the apex of mind, body, spirit,
My life has narrowed.
Food, sleep, meds.
Queer doesn’t matter if I can’t make myself eat.
For 10 minutes I lay in bed listening to my alarm
Begging my body to move
I would’ve seemed peaceful
Deep asleep
This body that refused to represent who I am, even in waking.
It’s more than disconnect. It’s distrust.
I amĀ disappearingĀ into my chest cavity.
I say it feels safe there, but I really hate it there.
It’s force of habit that leads me down this road.
My body is a war zone,
between what is and what I want it to be.
My rage has not fully quelled, but softened.
I might yet emerge to find myself fully alive.
Queer, even. Queer and Sick.
Mara Passio

We live in deeds, not years; in thoughts, not breaths

There’s a version of me that only exists in past tense. I think that’s true for everyone, but I realized recently that the difference is much more stark within me than it is within many. My past tense is a stranger towards whom I reach, simultaneously trying to pull inwards and push away. The realization that I cannot become who I once was is viciously painful. Sometimes I wish to forget that I have a past tense, as I realize more and more that the virtues I hold dear were stronger in me past tense.

There’s a version of me that only exists in the present tense. I came to the realization that I do not like who I am, present tense. And I have not liked who I am in the present tense for a while. This is not a new realization; it’s one I come to every few weeks, and I make changes and hope for the best and those changes stick or they don’t and I still don’t like myself present tense.

There’s a version of me that only exists in future tense. I’m not sure this is true for everyone, but it’s true for me, and it seems that my future tense is so wildly separate from my present tense that it could be a whole different person. My future tense has all of my emotional and physical limitations, but none of the character flaws. When building my future tense I didn’t plan to continue being unhappy with who I am.

I don’t believe I can reach my future tense until I become happy with who I am present tense, but I do not believe that has to or should involve giving up my values in order to find peace with my faults that I find intolerable and unethical. I also have come to the painful but necessary realization that the flaws I dislike about myself, others dislike about me as well.

I have become my illnesses. I have become narcolepsy. I have become bipolar disorder. I have become arthritis. I have become chronic pain. I have become post-traumatic stress disorder. I have become sickness. My personality is Unwell. And I am not proud. I am utterly ashamed.

I try to have empathy with myself, to realize that my life for the past few years has been a barrage of injury and illness. And on a level, I do understand that there is a reason I became the way I am. What that does not mean, however, is that I am excused to continue dwelling in despondent self-loathing. I am no longer excused from trying. And I don’t just mean trying on my own behalf. Trying means working to understand others. Trying means cooperation. Trying means being willing to be uncomfortable. And on a larger scale, trying means trying to work to improve the world as I see myself capable.

To be clear, I do not seek to divorce myself from my body, or from my illnesses. What I do seek is to divorce myself from the idea that my illnesses culminate into the total of my self. I have chronic illness, and I cannot and will not act otherwise. However, I am also a human being outside and alongside my illness, and these aspects of my self require time and space to thrive.

My future tense is a very long way away, and to be honest, I will always have some of my character flaws, although they may be smaller, more manageable shadows of the hulking barriers I currently have. Eventually though, my future tense may become my present tense. And in my future tense, I like myself uncompromising. If none of the rest of my future tense becomes my present tense, I dearly hope that I can one day like myself, present tense.